Actually it's from Ohio to Ukraine, back to Ohio, then to China

Tuesday, May 5, 2009

two weeks home (tomorrow night)

It still feels wonderful to be home! The last time I was this happy to be at home was after returning from Ukraine!! We're back to work and back into the swing of things. I am always surprised how much work piles up when you are out of the office for even a few days. I am getting caught up now though.
Wesley has been eating (even though it is not nearly as much as Damon and I would like). I think the reason is because he never has the chance to experience "hunger" and food filling that hunger. I tried to turn off his pump an hour or so before we tried to feed him by mouth, but that doesn't seem to make a big difference. We have also learned that Wes will not eat by mouth when other people are around. I am not sure what's up with that, but I figure that the distraction may be too much to handle. It isn't like eating actually holds his attention, so it's not too difficult to distract him.
Wes goes to the doctor Tuesday. I pray that the doctor tells us that we can begin bolus feedings (this would be feeding with a syringe, using gravity to get the food into his stomach as we were doing before surgery). This would allow us to feed him only as much as needed through the stomach tube, as we work on getting oral feedings to be the main source of nutrition. I wouldn't mind if he were on the pump at night, but the daytime pump has to go (and I'll tell the doctor that too). I'll update as soon as we know more.
Here are a few pictures from the last few weeks...

Wesley was learning how to ride the bike he got for his birthday (I did have to keep him from riding down the driveway on it though)

Wesley was "helping" Daddy mow the lawn

Wesley hanging out on the front porch (he only sat down for a minute)

Wesley and his Daddy

This was the look Wes gave me the last few days in the hospital - to me it means "seriously, how long do I have to be here?"

Wesley watching television with Duke

look at those beautiful blue eyes - I love them!

Wesley helping Mom and Dad with yard work

Wesley "smiling" (even though it looks more like a sneer)

I thought this shot showed how well Wesley has been healing. The incision on his stomach still has the surgical tape on it, but it is starting to fall off.

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